Monday, March 31, 2008

Still Fishing

At least that's the way things seem after Ben's orthopedic appointment Friday. It was another typical "routine" check-up for Ben. Not a whole lot of good news but not anything heartbreaking either. After so many doctor visits during his early years where we received what seemed like devastating information every time we saw a specialist I do believe we've finally arrived at a "plateau" we were once told about by another exceptional family.

Hopefully at some point in their young lives the studying, the picking, the prodding, and the questioning finally ends for these special kids. They are just expected to live their lives as best they can with the help that is already available and in place. The visits to Ben's specialists are becoming further apart. For the most part they all end with the phrase, "Call us if you need anything, otherwise we'll see you in a year."

Honestly I think this is good. Even though Ben's hip problems and scoliosis is worsening, it is occurring at a much slower rate than expected. Translation? Ben's orthopedist could not have showered Joan with any more compliments about the quality of Ben's care. As much as we'd like to take the credit most it all goes to every therapist who has ever spent time with Ben. The rest goes to Ben's nurses who have watched, learned, asked questions, and followed through with a daily regimen of work that Ben has to accomplish. Of course I'm missing the biggest key: Ben's determination.

I have to give pause every time I think about what he's been through and how much he has accomplished despite the obstacles, pain, and setbacks. I know I would've given up long ago. The smile you see in the picture is pure Ben. That is the young man we see about 90 percent of the time these days. The other ten percent he's probably sleeping and still looking just as handsome. It is amazing how much joy an individual who you can barely understand gives to the rest of us. With all the crap happening in the world these days I'll gladly take it. And my hope is that our blog and especially that smile on Ben's face gives you joy. After all, Ben doesn't just belong to us. He belongs to you too.

8 comments:

kimmyk said...

cool, if handsome belongs to me too, can i borrow him on days that end in Y?

Nurse Betty L. Boop said...

KimmyK-How about every day that's not Monday, Wednesday, and Friday..those are the days I get to claim him :^)

I just love that smile...and seeing it w/in 2 minutes of walking in the door this morning was just the best!!

sheepincognito said...

thanks for sharing Ben with all of us - his smile is a highlight of my blog reading time. Missed you at the recent shows - though I'm glad you didn't have to sit through them, it was a bit tedious...
Give Ben & Jessie and Joan a hello hug from all of us here! Miss you guys!

Above Average Joe said...

Glad to hear the news. Dont kid yourself you deserve some credit, too.

We also have that same fishing puzzle.

Hejaz Classic Carts Ladies Auxillary said...

Well I can tell you one thing - that smile definately gives me joy. And I am jealous - that pic is when ya'll we at the beach WITHOUT ME!!!! Losers! :-) Can't wait to see Mr. Ben this weekend!!!!!!!!!!!!!!!!!!

Hejaz Classic Carts Ladies Auxillary said...

PS That is ME above - VICKIE

Gretchen said...

Oh, I can't wait to meet this guy in June!!

Kyla said...

He is so handsome, Bennie. And you guys are doing great with your little guy!