As we sat in Walgreen's drive-through yesterday to pick up prescriptions for Ben, Joan captured this fun moment Jessie shared with her brother. Ben is listening to one side of the earphones. Ben is singing as he listens to the music!
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Grassroots support for parents of kids with special needs:
The Artists
- Ben and Bennie
- Greenville, South Carolina, United States
- Ben is a wonderfully happy 18-year-old boy. He has a rare genetic disorder scientifically known as Tetrasomy 12p. The related syndrome is called Pallister-Killian Syndrome (PKS). As for me (Bennie, the dad), I'm a 1986 graduate of Furman University with a BA in fine Art. Married to my wife Joan for 24 years, we have two children; a daughter named Jessie and our son Ben. It is our desire that this blog not only provide need fundraising for Make-A-Wish South Carolina but to also give you inspiration, hope, joy, and insight for your own journey in life.
3 comments:
Jessie is amazing--you can tell the love she has for Ben. What a beautiful family :)
Very sweet!
I love how she was holding his hand. That alone speaks volumes.
What was she listening to?
Such great kids!
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