Ben is now directing his work. We could not have been more proud!
Visit our new CafePress store!
Hint: click on the image
Grassroots support for parents of kids with special needs:
The Artists
- Ben and Bennie
- Greenville, South Carolina, United States
- Ben is a wonderfully happy 18-year-old boy. He has a rare genetic disorder scientifically known as Tetrasomy 12p. The related syndrome is called Pallister-Killian Syndrome (PKS). As for me (Bennie, the dad), I'm a 1986 graduate of Furman University with a BA in fine Art. Married to my wife Joan for 24 years, we have two children; a daughter named Jessie and our son Ben. It is our desire that this blog not only provide need fundraising for Make-A-Wish South Carolina but to also give you inspiration, hope, joy, and insight for your own journey in life.
1 comment:
Hi Bennie, Hi Ben,
thank you sooo much for sharing the artist at work. What an inspiration Ben is - that video made my day...
keep painting Ben - it's marvelous to see you create!
And, thank you Bennie for giving us the insights into your family and Ben's life, and for talking openly about the issues that affect exceptional children like Ben or Ashley.
and i couldn't agree more with you:"In regards to making the public aware of disability issues it is unfortunate that this issue has not united us but divided us. That is the worst part of this."
That is what takes away from the progress for people with disabilities - if all that energy wasted on word fights against each other was put into word fights for the kids and other people that depend on our voices to make themselves heard, i think the situation for many families would be better already, even if for no other reason than that the negative vibes are gone from their home.
I for one (as a parent of three children without severe disabilities) commend Ashley's parents and any other parent making such tough decisions on behalf of their children to make their lives better, or even just more bearable.
Parents of special needs children are the true heroes of our society - and they often fight without glamour, without medals and often without financial gain.
my hat off to all of you!
conni
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