The Longest Day
"We're rushing Ben to the hospital - he won't breath on his own. Please pray. Pass it on."
That's all I had time to write at about 1PM this afternoon. I will try and condense this into as short a post as I can. Ben has been ill with a respiratory virus the past two weeks or so. He was so sick that he required oxygen which he was weaned off of it a week ago today. Ben also finished up 10 days worth of antibiotics earlier this week, the second round of those in less than a month (he also got an IV amount of ABs at the pediatrician's office to kick off the second round). Although Ben showed some signs of stomach pain earlier this week, we were convinced he was pretty much "out of the woods." In the past our son has dealt with infection treatments with what has been labeled "stomach migraines," a term that can be best described as projectile vomiting coupled with severe pain and seizures. We were so wrong.
Yesterday, just before leaving for my in-law's lunch, Ben began vomiting. Between 1:30 in the afternoon and around 10:30 last night we guess that he threw up at least 6 times. After the first two times the little guy had very little to give up other than bile and congestive secretions. He was so tired that putting him to bed last night was rather uneventful.
I have no idea what time it was when he woke me and Joan up screaming into his monitor. Since Joan had to work today I went to check on him. As I climbed into his bed he had a look of fear in his face I don't think I've ever seen before. We snuggled under the covers which obviously comforted him. Within (I'm guessing) an hour he had fallen into a deep sleep.
Because of taking the "third watch" I slept in until late morning. I checked in with Nurse Vickie around 10:30 and found out not surprisingly he'd had a decent seizure but for the most part was doing well, particularly with his feeding.
Around 12:25 Vickie yelled for me to come down to Ben's therapy room. When I arrived she was bagging him. Ben was not breathing. Ben had a significant seizure just prior to this. Essentially Vickie kept Ben alive for the next 40 minutes via the Ambu Bag. Jessie called Joan, who arrived home in record time. At 12:40 we called 911. EMS was on our lawn within 5 minutes. I'm still pissed that they wouldn't allow me to ride with him but I got to Ben within 30 minutes. Ben was moved to the PICU around 6PM tonight and Joan is staying with him overnight.
He is in stable condition at the moment. We have no answers but several theories are being investigated. Some blood tests may tell us more tomorrow.
I will say that today I lived my worst nightmare. The knowledge that a neurologically challenged child can just decide their major organs just won't function anymore hangs over our family everyday. The worst part is that Jessie has been shaken up more than a 11-year-old deserves. She watched all of it.
Sorry I'm rambling on but I'm exhausted. That is all I know right now but I will keep everyone informed as much as possible over the next few days. Please keep the prayers coming. We believe in that. And even if you don't believe in it then do it anyway. It can't hurt.
UPDATE @ 9:20 - Seizures are coming in waves according to Joan. I am sick. I am empty. Fuck this.
Friday, November 28, 2008
The Longest Day