Pallister-Killian Syndrome:
Have you come seeking answers?
I've been watching our site counter much more closely this month. Mainly I've been interested in seeing how far away from the United States press The Ashley Treatment is being talked about. In doing that I discovered something far more fascinating: this blog is getting a reader just about every day from someone using Google to get information about PKS! This indeed amazes me because it suggests that Pallister Killian Syndrome (Tetrasomy 12p) is not so rare as we once thought!
If you have arrived here by way of Google or any other search engine looking for information about PKS then please stick around for awhile! Under the sidebar titled "About Our Exhibit" you'll find information about us and some wonderful links to several PKS sites. One of them, PKS Support, has been around for awhile now. They are moving to a newly built website and will be the gateway to other links around the world that support PKS families.
Also feel free to get in touch with me if you have any questions about Ben or our Pallister Killian Syndrome journey. My e-mail is benwaddell@bellsouth.net.
Have you come seeking answers?
I've been watching our site counter much more closely this month. Mainly I've been interested in seeing how far away from the United States press The Ashley Treatment is being talked about. In doing that I discovered something far more fascinating: this blog is getting a reader just about every day from someone using Google to get information about PKS! This indeed amazes me because it suggests that Pallister Killian Syndrome (Tetrasomy 12p) is not so rare as we once thought!
If you have arrived here by way of Google or any other search engine looking for information about PKS then please stick around for awhile! Under the sidebar titled "About Our Exhibit" you'll find information about us and some wonderful links to several PKS sites. One of them, PKS Support, has been around for awhile now. They are moving to a newly built website and will be the gateway to other links around the world that support PKS families.
Also feel free to get in touch with me if you have any questions about Ben or our Pallister Killian Syndrome journey. My e-mail is benwaddell@bellsouth.net.
4 comments:
You've certainly opened my eyes to this-I've never heard of it, or known anyone with it.
Thank you.
It's truly amazing how this technology can bring folks together.
Of course, people come to my site (still! as of yesterday!) looking for Chrissy Popadics (the Boise State cheerleader) and Staff Sgt. Michelle Manhart, USAF (and I don't even have the pictures of her really out of uniform)....
So keep up the good work, Bennie.
TC, I'm too embarrassed to admit what some of the other search phrases were. I'm still wondering about "tiny pee pee."
Jenelle's site is similar. Most people find us when the google "Lennox Gastaut" or "seizures in an infant" or "hand twitching". I've had the priviledge of receiving email from families from all over the globe, thanking me because they are grateful to finally find a child like their own. It is therapy for me, and sharing our remarkable children with the world only furthers their purpose in this life.
It is an amazing experience to get such feedback. I think it not only helps the readers but me too.
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