Wednesday, February 14, 2007

Happy Valentines Day!

Here's the summary:

1. Ben was a trooper and made it until 1 AM giving Joan an extra hour of sleep this morning before having to take her shift to arouse Ben.

2. I ended up awake early anyway to keep Ben somewhat alert while Joan got herself and Jessie dressed. We also checked the abscess on Ben's thigh. It had made it to the surface of his skin. This was a good thing.

3. Joan and Lisa took off for the EEG. I'm not sure how many of these Ben has had but he's slept through every one of them including today's. By the way Ben also slept comfortably last night.

4. Joan, Ben, and Lisa then made their way across town to see the pediatric surgeon. By this time the abscess and "blown" so there was no need to have it drained.

5. After receiving the care instructions for the sore it was back over to the neurologist to discuss the seizures and the EGG. For the first time there was a slight indication of where at least one of the types of seizures Ben has been having is originating from. We also had gave a very descriptive account of Ben's motions as he is seizing. It turns out that this verified the EEG findings for the milder type of episode but also gave the doctor a good indication of where the stronger seizures are probably coming from. We will now consider a couple of different drugs Ben could take should the seizures continue.

6. Vickie, you'll love this. Ben completely entertained Dr. Morales! He smiled, he laughed, he tried to get up, he "talked." For those that are unaware, this was the neurologist that wrote Ben off just before he turned two as being nothing more than a vegetable. Ben even made Morales laugh.

What does all this mean? We know absolutely nothing still about what triggered all of these episodes about ten days ago. Was it the teething? The abscess? A virus? A growth spurt? Chances are we'll never know. The good thing is that we do now have a plan and a trustworthy neurologist back on our "team."

The plan now is to see if the seizure activity decreases or at least stabilizes over the next few days and weeks. If they continue to persist at the current level we will have no choice but to begin drug therapy. We're still not real happy with the thought but it will be best for Ben and the rest of the family's sleep patterns. We've also had our fears alleviated that the seizures might cause more neurological damage to Ben.

All in all Ben has had the best day he's had in about two weeks. It was tough for me and Joan to squeeze in that short nap while listening to Ben and Lisa laughing and playing downstairs. I guess we'll call those Valentine's Ear Candy.

7 comments:

kimmyk said...

I'm glad to hear y'all had a good day. What a lovely picture too by the way. Your wife is quite lovely. Y'all look so happy. That nap musta did ya some good.

And how can you not smile when you hear a child laugh? Those are some of the best sounds ever.

Hope you get some rest tonight. I'm sure it's hard on everyone....sleep deprivation is a horrible thing.

Ben and Bennie said...

Kim, thank you so much for the kind thoughts (also kudos on the Styx reference!). I'll have to admit that me and Joan have had our problems in the past. Our wha-hoo moments are far and few in between but we both share an incredible love for our children.

We're all smiles and warm hearts tonight because Ben has kept his laughter throughout the evening.

The prayers of yours, Kyla, Casey, Vance, and others I'm forgetting make those changes we need.

BTW, I told Joan earlier of your son's description of Stewart Copeland looking like Jerry Springer. Big laughs here!

Kyla said...

I'm glad there were some (partial) answers and some of those fears were alleviated. All we get are partial answers too! *lol* Our "special" kiddos are unique even in the realm of their conditions. I love that Ben showed off for that doctor. Way to go!

Good luck with the waiting...we're on the no med track doing the same thing....waiting to see what these suckers are going to do. (we're on day 11 without an episode *knock on wood*). I hope you guys see them stabilize soon!!

The Curmudgeon said...

Wow. Just caught up.

You and your family sure do have my good thoughts coming your way. Hope things settle down in a good way for all of you so you can work on your show and the other stuff that needs doing.

Jeni said...

i am not a religous person, but i imagine prayers were sent up for your family. if your blog does anything for ben it creates a network of good charma, good vibes and prayers.

Anonymous said...

First of all I am so proud of Ben! I am glad he showed off for Dr. Morales. Second, I am glad the abscess did it's own thing. Third, I am glad there were some answers to his seizures. I am thinking good thoughts, and also thinking that abcess may have had alot to do with it. See, you guys always know what to do for Ben. If medication becomes a solution for seizures I know that you will do what is best for Ben.
Sending love and thoughts your way.

moosh in indy. said...

Isn't it amazing how Valentine's comes to mean something different for all of us? Glad yours ended on an up note.
My Valentie's was celebrated today with 1/2 price mini Valentines Snickers.
A whole bag.
mmmm.