Some good news (we think).
Ben's blood work came back from the lab squeaky clean. Our worst fear (shunt infection) has been eliminated. The semi-bad news is that we honestly don't know what is going on. We have two theories that we think are happening simultaneously. An inner ear infection and the beginnings of a stomach bug that has been making it's rounds here locally.
This is another aspect of living with an exceptional child. He can't tell us where it hurts or why he's so sleepy. We just know that his pattern of behavior has remarkably changed the past few days. No fever. Regular bowel movements. No strange colors coming out of places where strangely-colored things sometimes come out of.
Those looking in wonder why have we jumped to panic mode. We've seen some horrible outcomes occur from illnesses that began with the mildest of symptoms. As we were putting Ben back in the van after his doctor's appointment Jenny lamented about something which me and Joan have known for most of Ben's life with us. These special kids may look so very normal when peering into their bodies whether through x-ray, MRI, or ultrasound. But the reality is that their insides work much different than mine or yours.
Therefore we are always on guard. Please continue to think of Ben over the next few days. The worry is indeed still there.
Tuesday, December 12, 2006
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7 comments:
Wonderful. This is as least semi-good news and I can apparently -- finally -- tell you I'm pulling for you.
(Beta wouldn't let me post all day, even as Anonymous or Other. I'm all the way back to Other now....)
Thinking of you & Ben..
keep hanging in there - maybe he's just trying to hibernate so he can be awake all the way from christmas eve to new year's day, like a party animal :o)
prayers are in progress...
conni
Gals & Guys, thank you so much for the thoughts & chicken sacrifices. I understand Blogger has been a Crapper today. I got some e-mails telling me that. Don't hesitate to use the e-mail I use.
No puking yet. Me and the Miz have a pretty good routine in these weird circumstances. He's still not himself (hard to describe) but he's refused to leave the wheelchair while he sits staring at the Christmas Tree.
It's a beautiful sight.
One of the things I remember the most from my time working in special ed is when the kids got sick. It was, like you said, so hard to figure out when they were sick and where it hurt. I remember the nurse wanting to check out one autistic little girl but she needed her permission to touch her first. That wasnt happening, bc she didnt understand. Not the same thing but oh the things we take for granted sometimes.
You really are an amazing individual. I can't imagine the patience and strength of heart it takes to do what you do on a daily basis.
Thinking of Ben.
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