Need some good thoughts...
We can't get Ben to wake up again. We're frightened. Please pass this along.
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Grassroots support for parents of kids with special needs:
The Artists
- Ben and Bennie
- Greenville, South Carolina, United States
- Ben is a wonderfully happy 18-year-old boy. He has a rare genetic disorder scientifically known as Tetrasomy 12p. The related syndrome is called Pallister-Killian Syndrome (PKS). As for me (Bennie, the dad), I'm a 1986 graduate of Furman University with a BA in fine Art. Married to my wife Joan for 24 years, we have two children; a daughter named Jessie and our son Ben. It is our desire that this blog not only provide need fundraising for Make-A-Wish South Carolina but to also give you inspiration, hope, joy, and insight for your own journey in life.
2 comments:
Sending strong thoughts your way. May god hold all of you in the palm of her hand.
Stay calm... you know how he is. Maybe he stayed awake a good bit last night. Just keep an eye on him like you always do. Ya'll are the best and know when he is in trouble... trust your gut. See how he is in the morning. And know that you can always call me tomorrow if you need to. I'll have my cell.
***Sending Love to Ben***
Vickie
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