tag:blogger.com,1999:blog-35458200.post7133772173344263657..comments2023-11-02T05:15:04.402-05:00Comments on A Work of Art: Raising Our Exceptional Son: Ben and Benniehttp://www.blogger.com/profile/12165216797183902071noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-35458200.post-25699812217822405392011-11-29T10:26:24.874-05:002011-11-29T10:26:24.874-05:00Hello, my name is Franco and I am the father of Pi...Hello, my name is Franco and I am the father of Pier Carlo a beautiful baby who suffers from the same syndrome of Ben. If you see photos of Pier Carlo notaries what you look like you.<br />How can we contact?Francohttps://www.blogger.com/profile/10645135454727305675noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-87935355389514526632007-02-11T16:48:00.000-05:002007-02-11T16:48:00.000-05:00What a cutie-pie!Peace...........What a cutie-pie!<BR/>Peace...........Helenhttps://www.blogger.com/profile/10093883573839122409noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-89708134139279426022007-02-10T17:24:00.000-05:002007-02-10T17:24:00.000-05:00Ben is one amazing little dude. And #100 is defini...Ben is one amazing little dude. And #100 is definitely the most important.Kylahttps://www.blogger.com/profile/03311014761113076785noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-73429507547770544922007-02-09T00:46:00.000-05:002007-02-09T00:46:00.000-05:00Oh my, how I loved reading your list. Hi, I am Ki...Oh my, how I loved reading your list. Hi, I am Kim, a friend of Casey. Thank you for sharing your story with us. Ben seems like a great kid. I will be a regular visitor from now on!Anonymoushttps://www.blogger.com/profile/02934906539939527687noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-81826772753003807412007-02-08T19:59:00.000-05:002007-02-08T19:59:00.000-05:00The Cur just made me laugh out loud. Gotta go fin...The Cur just made me laugh out loud. Gotta go find some Windex...Ben and Benniehttps://www.blogger.com/profile/12165216797183902071noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-14957297910828783192007-02-08T18:26:00.000-05:002007-02-08T18:26:00.000-05:00It's a nice list -- just one question, Bennie, re:...It's a nice list -- just one question, Bennie, re: Nos. 46 & 47.<BR/><BR/>Does Ben try to take your guitar because he wants to play it, too... or because he loves music?<BR/><BR/>(<I>Ducking now.</I>)The Curmudgeonhttps://www.blogger.com/profile/14723009641287783218noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-8923883330627434542007-02-08T12:48:00.000-05:002007-02-08T12:48:00.000-05:00Casey - the squirrel is wearing the shirt so we mi...Casey - the squirrel is wearing the shirt so we might have to go with The Black Snake theme for Ben.<BR/><BR/>KimmyK - Ben loves all kinds of music except The Wiggles. Immediate seizure activity (from me, not him).<BR/>Also the valve has a mesh-like material that allows him to breath in air but won't let it back out. It therefore is forced out over his vocal cords through his mouth and nose.<BR/><BR/>HBM - So good having you stop by! That has been our motto since day 1...okay maybe it was day 2.<BR/><BR/>Sandi - just you wait. We have THREE black snake stories to be told this evening. Fun stuff...except for my wife.<BR/><BR/>T&T - Your blog was one of the first ones I read regularly. I'm so ashamed for losing touch. I'll have to get back over there and catch up!Ben and Benniehttps://www.blogger.com/profile/12165216797183902071noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-33959920808022349012007-02-08T11:23:00.000-05:002007-02-08T11:23:00.000-05:00What a wonderful list! Thanks for sharing them!What a wonderful list! Thanks for sharing them!Kaceyhttps://www.blogger.com/profile/04944181587587425003noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-34009866811185665022007-02-07T21:57:00.000-05:002007-02-07T21:57:00.000-05:00Oh I love reading these 100 things! Especially abo...Oh I love reading these 100 things! Especially about Ben.. what a sweet picture at the top.<BR/><BR/>I would have died about the snake too.. but I can just see Ben laughing it up:)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-35458200.post-57571727907187798402007-02-07T21:12:00.000-05:002007-02-07T21:12:00.000-05:00Three cheers for #100. Three BIG cheers.Three cheers for #100. Three BIG cheers.Her Bad Motherhttps://www.blogger.com/profile/03535958887714152413noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-52045804559857433832007-02-07T20:56:00.000-05:002007-02-07T20:56:00.000-05:00OMG @ the black snake!! I would have pee'd right ...OMG @ the black snake!! I would have pee'd right there!! <br /><br />I'm sorry to hear of all the hospital trips and sickness in Ben's life. But they say what doesn't kill you makes you stronger? Or something like that. He's a tough little guy.<br /><br />Now what kind of music gets Ben moving? Would you explain to me how the Passy Muir works? I think that's pretty cool. <br /><br />This was a great thing this 100. I learned soo much about him and your family. I love that he slept in a wagon-how cool and fun would that be to be wheeled around. Probably helped with putting him to sleep.kimmykhttps://www.blogger.com/profile/15527009466610518600noreply@blogger.comtag:blogger.com,1999:blog-35458200.post-47726266821284697612007-02-07T20:38:00.000-05:002007-02-07T20:38:00.000-05:00Ben's shirt says "central park squirrel" or the sq...Ben's shirt says "central park squirrel" or the squirrel's shirt says that? If it's not Ben's I highly suggest you make one, or maybe one that says "Greenville Black Snake Sitter".moosh in indy.https://www.blogger.com/profile/12077275788790896224noreply@blogger.com